Brooklyn Council Member Mercedes Narcisse has expressed delight that a bill for improving care and treatment for sickle cell disease, a cause close to her heart, has officially become law in New York City.
“This groundbreaking legislation represents a major advancement in healthcare, especially for communities disproportionately affected by sickle cell disease,” Narcisse, the Haitian-born representative for the 46th Council District in Brooklyn, told Caribbean Life on Monday.
As a nurse and a carrier of the sickle cell trait, Narcisse said she has been “deeply committed to advocating for better healthcare policies for individuals living with this condition.”
She said her personal connection to the disease, with nieces who are affected, has fueled her passion and dedication to this cause.
“As a nurse, a carrier of the sickle cell trait, and a representative of a community deeply affected by this disease, I am profoundly moved and inspired by the passage of this legislation,” Narcisse said. “This isn’t just a law, it’s a beacon of hope for countless individuals and families grappling with sickle cell disease.
“It represents our city’s commitment to equitable healthcare and acknowledges the often-overlooked needs of those living with this condition,” she added. “My fight doesn’t end here. I will continue to advocate, educate, and work tirelessly to ensure that every person affected by sickle cell disease receives the care, understanding and support they rightfully deserve.”
Over the weekend, Narcisse joined Cheryl Wills on NY1’s “In Focus” program to discuss the significance of this new law.
During the program, she emphasized the “critical need for heightened awareness and understanding of sickle cell disease, particularly in African and Caribbean communities where the condition is more prevalent.”
The council member said the legislation introduces comprehensive guidelines for managing and treating sickle cell disease, focusing on key aspects such as genetic screening, professional education and public awareness.
She said the legislation also addresses the importance of non-discriminatory pain management and the integration of mental health support for patients, “reflecting a holistic approach to healthcare.”
“The passing of this law is a significant victory for our community and a step forward in ensuring that all New Yorkers, regardless of their background, have access to the best possible healthcare,” Narcisse said. “It underscores our commitment to addressing healthcare disparities and improving the quality of life for those affected by sickle cell disease.”
